性聯遺傳型低磷酸鹽症活動
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活動日曆
October 2022
SUN
23 OCT
Join us this October 23rd, 2022, to celebrate the launch of Shine A Light on XLH Virtual Exhibition in conjunction with International XLH Awareness Day (23rd October 2022) as we share with you the experiences and stories of 11 amazing people living with X-Linked Hypophosphatemia (XLH) – a rare lifelong skeletal disease that is caused by a lack of phosphate, affecting about 1 in 20,000 people.1
References : 1. Beck-Nielsen SS, Mughal Z, Haffner D, et al. FGF23 and its role in X-linked hypophosphatemia-related morbidity. Orphanet J Rare Dis. 2019;14:58.
AP-NP-22-00025 OCT2022
Details
- Date and Time
Sunday 23rd October 2002
- Location
Website
Other
Event Type
International XLH Awareness Day
Event Topic
Conditions
SUN
23 OCT
International XLH Awareness Day – Shine A Light On XLH
References : 1. Beck-Nielsen SS, Mughal Z, Haffner D, et al. FGF23 and its role in X-linked hypophosphatemia-related morbidity. Orphanet J Rare Dis. 2019;14:58.
AP-NP-22-00025 OCT2022
Details
- Date and Time
Sunday 23rd October 2002
- Location
Other
Event Type
International XLH Awareness Day
