TAIWAN XLH PATIENT STORY

患者從 1 歲時開始出現症狀，大約 1-2 歲前會被診斷出來，建議父母親需特別注意所面臨的症狀

走路不穩
他腳有點彎, 不是很直這樣子
跟同學比, 身高比較矮
接受過許多手術
好像是他們比較遠親那邊, 有一些也是類似這個情況
然後戶外活動都有參加, 可是他每次參加回來之後, 他的腳會很酸很酸嚴重的酸痛

TAIWAN XLH PATIENT STORY
Part 1 : Patient burden from patient perspective

TAIWAN XLH PATIENT STORY
Part 2 : Physician explanation about XLH

TAIWAN XLH PATIENT STORY
Part 3 : Patient journey on limitation of conventional therapy

TAIWAN XLH PATIENT STORY
Part 4 : Physician explanation on conventional therapy

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block used to called the font journal. do not delete it. thanks

Date of preparation: June 2020

TAIWAN XLH PATIENT STORY

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