Managing XLH | XLH Link Asia for Patients and Healthcare Professionals

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Category: Managing XLH

Management for Children

By treating children, specialist doctors aim to improve the rate at which they grow, reduce their leg bowing, decrease bone disease and pain and increase their phosphorus levels.

Management for Adults

There are a number of treatment options for adults with XLH. A specialist doctor will aim to find the best approach for your particular symptoms.

Dental

Because XLH affects your teeth and gums, it's important to get your dentist’s support and stick to a good dental hygiene routine. Here we explain why and how.

Medicines

Phosphate and calcitriol are prescribed to reduce bone pain and osteomalacia and improve healing. This section is about decisions you might face when taking phosphate and calcitriol long term.

Your healthcare team

Your healthcare team is there to guide and support you through your journey with XLH. This article explains the different roles of the professionals you may meet.

Support for parents

Although the thought of managing your child’s XLH may seem overwhelming at first, there is support and guidance available.

Disclaimer This information is for educational purposes only and is not intended to provide medical advice. Your healthcare professional should always be your primary source of medical advice for any health, diagnosis or treatment practices. The external links and information provided are not controlled by, endorsed by, or affiliated with Kyowa Kirin Asia Pacific Pte Ltd or any of its affiiates and we make no representation as to the completeness or accuracy of the information contained in these sites. You enter third party websites at your own risk and are subject to their terms and conditions. By accessing and using this website, you agree to our Terms of Use and Privacy Policy.

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Date of preparation: June 2020

KKAP/BUR/0120